My Autistic Child Makes Me Miserable
- Ryan Burbank

- Mar 30
- 6 min read
AWRYTE | Weekly Post I saw it once in a parenting forum—someone typed it plain: “My autistic child makes me miserable.” No context. No follow-up. Just that. A sentence that cut through my chest like a paper slice. Because here’s the uncomfortable truth: some days are miserable. But it’s not because our kids are autistic. It’s because parenting in a world that doesn’t support difference is. When I had my first child, I was full of ideas about what it would be like. The rituals, the milestones, the “normal” stuff you’re trained to look forward to—birthday parties, playdates, report cards pinned to the fridge. I didn’t picture meltdowns over toothpaste or fights over how a sock fits. I didn’t imagine walking on eggshells trying to predict which tiny thing might be too much. I didn’t expect to feel this drained. And yes, sometimes miserable. But not because my kid is autistic. Because I didn’t know how to be the parent they actually needed. Nobody tells you that the manual doesn’t exist. They’ll sell you ten thousand versions of it. But when you’re raising a kid whose brain is wired differently than yours, every chapter has to be rewritten. Sometimes daily. I used to feel ashamed for admitting I was struggling. I’d say things like, “It’s just been a rough week” when it had actually been three months of nonstop stress. I’d soften the language. Say “overwhelmed” instead of “burned out.” Say “challenging” instead of “I’m barely holding it together.” But language matters. Because when we’re honest, we make space for each other to stop pretending. So let me be honest: There were days I cried in the bathroom. There were days I yelled. There were days I felt resentful and helpless and full of guilt for feeling resentful and helpless. And in those moments, if someone had asked me point blank, “Are you okay?” I don’t know what I would’ve said. I might’ve blurted something I didn’t mean. Something sharp. Something like: “This is miserable.” Because it was. Because I was. But that’s not my child’s fault. That’s the weight of invisible labor, unmet needs, and a constant feeling of failure. Autistic kids are not the source of misery. But the systems that fail to understand them are. The lack of support is. The judgment is. The isolation is. Nobody hands you a survival plan for the long nights or the sensory chaos or the way your world shrinks when you’re trying to hold your child’s together. They just hand you labels. And advice you didn’t ask for. And side-eyes in grocery stores. And if you say the quiet part out loud—that some days you hate how hard this feels—people hear it as an attack on your child. But it’s not. It’s grief. It’s confusion. It’s mourning the version of parenting you were sold. It’s realizing you need different skills. Different tools. Different community. AWRYTE started in my brain long before I had a name for it. It was that little whisper that said: there has to be another way to talk about this. A way that doesn’t label kids as burdens or paint parents as saints. A way to hold space for the messy middle, where love and frustration live together. Because I do love my child. Fiercely. I’ve gone to war for them more times than I can count—at schools, in hospitals, in rooms full of people who just don’t get it. I’ve restructured our entire life around their needs, not because I’m a martyr, but because that’s what love looks like for us. Still. Some days, I feel like I’m drowning in unmet expectations. And I need to say that out loud—not for sympathy, but for solidarity. If you’re reading this and you’ve ever typed those words into a search bar—“my autistic child makes me miserable”—I get it. You weren’t trying to be cruel. You were trying to make sense of something impossible to say in public. But here’s the reframe: It’s not them. It’s the gap between what they need and what you were taught to give. It’s the silence around parenting that doesn’t look like a Hallmark card. It’s the exhaustion of carrying shame for things you were never shown how to handle. You’re not a bad parent for being tired. You’re not a monster for needing space. You’re human. You’re overwhelmed. You’re adjusting. That doesn’t make your child less worthy. That doesn’t mean they’re the problem. It means we all need more support, more truth, and way more space to say: “This is hard, and I’m still here.” That’s what AWRYTE stands for.
Understanding Isn’t Always Automatic By Ryan | AWRYTE I used to think I was a mind-reader. Not the magical, card-trick kind. Just… hyper-aware. Tuned in. Constantly scanning for signs of what people needed, what they were feeling, what they weren’t saying. It was a survival skill. Not empathy, exactly—but overcompensation. I couldn’t always read facial expressions or pick up on sarcasm, so I became a detective. Noticing everything. Guessing wildly. Apologizing constantly. And still, I missed things. So when people tell me I’m hard to talk to, or that I don’t understand what they need, it cuts deep. Because I want to understand. I try to understand. I’ve built my whole life around trying to make people feel seen and safe—often at the cost of myself. But here’s the part nobody tells you: autistic people aren’t born with a rulebook for how neurotypical communication works. We don’t get the unspoken cues. We miss the coded language. We’re not wired for implication. So when someone hints, I miss it. When they soften their words, I take them at face value. When they say, “It’s fine,” I believe them. Then later, I get blindsided with, “I shouldn’t have to explain everything.” But actually? You do. You do have to explain. Not because I’m trying to be difficult. But because I’m not guessing. Because guessing is a dangerous game for me. Because I’ve spent my whole life being punished for guessing wrong. I remember a time in my early twenties, in a relationship where the entire emotional ecosystem revolved around reading between the lines. If he came home and sighed, I’d freeze. If he gave a short answer, I’d spiral. Everything felt like a test I hadn’t studied for. Eventually, I asked him, flat-out: “What do you need from me right now?” He looked at me like I was being dense. “I need you to just know.” But I didn’t. I couldn’t. And that made me feel defective. I carried that shame for years. I assumed everyone else was walking around with some magical decoder ring, and I’d been left out of the club. But the truth is, most people are just better at faking it. Autistic people tend to be more literal. More direct. More transparent. We say what we mean. We expect others to do the same. But in a world where people are trained to “be nice” instead of “be clear,” that puts us at a huge disadvantage. So when someone tells me their needs clearly, it’s not insulting—it’s a relief. If you love someone who’s autistic, or work with someone who is, or even just want to build a stronger connection, here’s the simplest way to start: Say the thing. All of it. Out loud. Not in hints. Not with side-eyes and loaded pauses. Not through silence and hope. Just say it.
I know that goes against a lot of social conditioning. I know people are taught to soften their language to avoid confrontation, or to expect others to “just get it.” But for us, clarity is kindness. When someone gives me a clear sentence— “I feel overwhelmed when plans change last minute,” or “I need a response within 24 hours to feel secure,” or “Please don’t interrupt me when I’m focused” —I can work with that. I can actually meet that need. I want to. What’s hard is when I’m expected to reverse-engineer someone’s tone of voice, or decode a vague post, or read a subtext that was never actually spoken. Because when I miss it, I get blamed. And when I ask for clarity, I get told I’m being difficult. So here’s my plea to the world: If you want to be understood, be willing to speak clearly. If you care about an autistic person, give them the chance to meet your needs by stating them, not implying them.
And if you're the autistic person who’s been made to feel like you're impossible to connect with—know this: you're not broken. You just speak a different language. And you deserve relationships where both people learn each other’s dialect. AWRYTE isn’t about fixing communication. It’s about making space for real communication—the kind that doesn’t require guesswork or punishment. The kind that gives us all a shot at being known. We don’t need more mind readers. We need more people willing to speak plainly. And more people willing to listen without judgment. I can understand you. I want to. But you’ve got to help me get there. With words. With trust. With time. AWRYTE on.
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